As I was running my fingers through Hunter’s hair waiting for his MRI, it was coming out in my hands. Today is the day that it’s officially starting to fall out. Definitely not a fun thing to see and it’s almost another slap in the face as to what is really happening.
His MRI today is for the blood clot they found in his brain two days ago. The doctor’s didn’t seem to think it was anything to worry about and just want to do the MRI to follow up and check on its progress. So I guess we should only be slightly terrified.
For whatever reason, he is still not wanting to crawl or even move around in the least bit. He continues to cry and moan each time we change his diaper, which makes us think that the little man has something else ailing him. It could be his slightly enlarged liver or spleen, it could be the Leukemia, he could just be sore and achy from the Chemo or it could be an infection, fungus…….apparently the list can go on and on.
We’ve now lived here at the hospital for over a month. I have to write the level number on my hand every time I park the car to remember where it is I parked. It’s all starting to run together.
Every time Hunter leaves his room he has to have on a green mask. He is only allowed to leave for procedures when his blood levels are extremely low or at zero. Needless to say, he won't be seeing Santa this year.
The odor of McDonalds french fries is almost always present. With it being the ONLY restaurant in the hospital, other than the cafeteria, it is frequented often by the visitors, patients AND doctors. We are there now on a regular basis getting Hunter fries. The hospital nutritionist has told us that he now needs to gain weight and needs to eat anything that has lots of fat, like peanut butter, sour cream, mayo and chocolate. Zen was courageous enough to mix a whole packet of syrup into his peach yogurt. That came up about 2 hours later. All over my pillow from home. Nice.
Here we are above going back to our room for the night. Hunter was a total trooper during the entire process today and once again - took it like a stud.
I’m sitting here now starring right at him and he has a smile on his face. He’s my precious little baby boy and the joy and tenderness and love he’s brought in my life has been a truly amazing experience. I will never allow him to give up and he’s well aware that life has only just begun.
Posted by Lenore
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