Hunter has been fever free for 3 days and nights! Whoo-hoo! What a relief.
Although fever free, yesterday morning he was so low energy and seemingly in so much pain that he didn't want to be touched. He would scream when we changed his diaper. He spent most of the morning refusing food. It was totally depressing and I watched Lenore crying over her baby in desperation as Hunter moaned. It was another low point for sure.
The doctors and nurses started discussing the possibility of giving Hunter a narcotic for the pain. I was resistant to that idea but I was also tired of seeing Hunter miserable. I didn't know what to do.
Then we saw a little blood coming from his nose. Not usually a good thing but what it did was start the doctors down the right road. They immediately ordered red blood and platelets.
I had a plan to go for a quick dirt bike ride in the afternoon to get a little exercise and to free my mind. I was reluctant to leave Hunter feeling so poor but I felt assured the doctors had things in control and that over-all, Hunter was stable. So I went anyway. It was honestly the first time in more than a month that I was able to stop thinking about Hunter's situation. I was starting to feel mentally and physically pent up and aggressive. Two hours of intense off-road riding with stunt man Clay Cullen and his stunt buddy Casey alleviated all of that frustration. I felt like a new man. Thanks fellas!
When I returned to our hospital home I saw a different baby. He smiled as I walked in the room. He was eating. Lenore took a break and went to the grove to do a little Christmas shopping. I spent three or four hours alone with my boy - just playing and hanging out together. His lips were red again. His behavior was that of the old Hunter - happy and content! Although he still wasn't moving much on his own I could pick him up and he barley let out a protest. Truly, a relief. It feels so good to see our son again.
Thank goodness for life blood. Thank goodness for modern science. We are so fortunate to be dealing with this disease at this time in the modern World. For that we are eternally thankful!
Tuesday, December 18, 2007
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